THis is dedicated to those who continue to fight Cystic Fibrosis
The time we spent together wasn’t
always the best, though we tried
to appreciate every minute
just that much more
When you were born I wanted so
very much more than you could ever want even for yourself
And in your time spent here you brought
so much joy to others
beyond anything I’d ever known exist anywhere else
much more than any other one I’d ever loved
And the first time you said it,
I thought I’d died, Sixty-Five Roses
Sixty-Five Roses, Fighting to stay alive!
Picked by God’s hand for you
Though it’s hard to see right now
He has a plan for you,
you’ve got to hold on somehow..
Sixty-Five Roses, Sixty-Five Roses
You are forever in our memories…
I Can see your smiling face,
Your hair pulled back like Madonna,
brilliant artwork scattered portraits
taking treatment to the last days…
I Can see you now in paradise,
in a garden of roses
Dancing amongst Holy Spirits in a garden of roses..
Sixty-Five Roses, Sixty-Five Roses
And on the day you left us
I cried so hard,
I remember your body scant and pale
your hands cold and damp,
Yet your love and hope
still shown through
Your eyes - your face
as they always had,
Your lips, I remember the words like yesterday
as we laid
Sixty-Five Roses
at your grave,
Sixty-Five, Sixty-Five Roses
This song I wrote in 1998 after a patient of mine and good friend had passed away, some of the words are my own, some hers, some I heard spoken first by her close friends. “Sixty-five Roses” is often how children diagnosed with Cystic Fibrosis pronounce their disease. CF is a genetic disease for which there is now hope on the horizon to cure.
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